About Our Journey

After being a born a happy & healthy boy, at 2 months old Cameron was losing weight & breathing unusually. This lead to an extensive workup during a week long inpatient hospital stay. Cam was discharged from the hospital with a rare diagnosis of Neuroendocrine Cell Hyperplasia of Infancy (NEHI), which is a subtype of Childhood Interstitial Lung Disease (chILD).

With this chronic lung disease and the effects on his body, Cam has many increased needs. Cam requires 24/7 oxygen use, a heart rate/oxygen level monitor, multiple types of breathing therapy devices, and nutritional support with a surgically implanted feeding tube. With his lung disease, a simple cold can lead him to need additional oxygen support and hospitalization. He has spent many nights hanging out with his family and getting to know the nurses at M Health Fairview Masonic Children’s Hospital. He has received incredible care at Masonic and with the many different specialties that he interacts with there.

Despite his medical needs, Cameron is a rambunctious toddler boy. His parents have strived to promote normalcy in his life, sending him to daycare, playing with friends, attending community events, and engaging in sports. Although it remains unclear when he may outgrow his need for these additional supports, they have navigated the logistics of his medical needs to allow him to have this normalcy whenever possible.